It was 30 years ago when I was diagnosed with Wegener’s Granulomatosis. Part of the treatment at the time was chemotherapy drugs – Cytoxan. I was 17 years old and the disorder caused high blood pressure, arthritis, joint pain and respiratory problems and eventually at age 30 – end stage renal disease. I was on the wait list for four years and started my journey with peritoneal dialysis in February 1999. After 3 1/2 years on PD I became very ill with an infection and was hospitalized and immediately put on Hemodialysis. My family members were tested however, there wasn’t a match. After nearly a year on hemo, I received a call saying there was a perfect match from a cadaver. My transplant was a success and I understood I hadn’t realized how bad I felt.
It’s been nearly 11 years since my transplant and I’m excited to be a part of ReMend to share my story and hopefully help people who are in the same situation.